Jocelyn Paige Lee Foundation

December 2007 Well the results came in…. It was positive. She has SMA. Spinal Muscular Atrophy. (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. Why us? How could this be? It is not fair! Are all things that went through our head. These are all things we may never know. What we do know is that we have been chosen, given the honor of caring and loving for this precious little angel we get to call our daughter. It is not tears and fear she needs to see each day. It is happiness, the same happiness we see in her. We had to remind ourselves that somehow this is all part of God’s Plan. We need to have faith and trust in the Lord.