Jocelyn Paige Lee Foundation

September 2007 This was a very busy month for our little angel. She was tested for what seemed to be everything under the sun. At this time each test seemed to come back normal and we would feel relieved and prayed that it was just a form of hypotonia that she may out grow. At one of her appointments the neurologist noticed that Jocelyn had tongue fasiculations. She was pretty sure this meant she had SMA but wanted to be sure. This is when we were referred to the neurologist at UNC and also to have a genetic test done.