I wanted to take the time to say THANK YOU! We are so very blessed to have such great friends and family! The golf tournament went very well. Thanks to all those that were able to participate and contributed. We had a great time and Jocelyn had a wonderful day! She was a little disappointed when I brought her back from her golf cart ride. I think she may could have rode on there all day Some more great news…….. We got it….. the wheelchair is here!!!!! So far she is doing o.k in it. We do not have a back brace that fits her right now so I think that will make a difference but for now she is doing well for short periods at a time. I think it must be something she will have to get used to. And as soon as i figure out the position that is going to be best for her. We will take some picture of her in it and post them this weekend. She was showing off for Daddy last night in it. Real cute. She loved to try to chase him. I promise I will update again sooner.
Monthly Archives: September 2009
I can’t believe how long it has been since I updated. Sorry! We have just been having lots of fun and keeping busy while the weather still allows us to. We have been able to spend time with lots of family and friends that we don’t get to see very often. We were very sad to have to miss traveling to FL for cousin Kelly’s wedding but soooo excited that things worked out and we were able to travel to PA for the reception! It was so great to see everyone and we are so thankful for family being so understanding and inviting Jocelyn to come hang out with the adults for the evening. She did a great job and just loved all the attention and watching everyone dance. It is very hard to say good-bye when spending time with family and friends. It isn’t very often we get to visit with each other. We miss all of you sooooo much! We truly cherish every minute we get to spend time with you! We also have had the wonderful opportunity of meeting another SMA family. It has truly been a blessing. What a wonderful family they are. We were able to attend a golf tournament they put on for Mackinley! What a huge success!!!! He to is such a little trooper too. So adorable! So please keep this family in your prayers too. We together look forward to the day we get the news that the cure is finally here! Speaking of there is a website called unite for the cure http://uniteforthecure.com/ . A family has spoken with one of the doctors involved in the stem cell research and we have learned how close they are. Unfortunately funding is what is holding up the process. You can read more about it at the website but please if you feel led to help contribute we would greatly appreciate. We pray each day for a cure and the reality is it is close. To continue we were also able to return to Myrtle Beach for a quick weekend. It was lots of fun! Although we are ending our traveling here for a bit we are still enjoying being home. We have gone on boat rides, walks, played outside, to the beach. We are taking advantage of the beautiful weather while it lasts. We would like to remind everyone that we are doing a golf tournament in honor of Jocelyn on the 19th of Sept. The info is on the home page of this website. Please if you are able to play please take the time to register ahead of time. It helps us as we are trying to get a head count for how many we will have and for food. Please spread the word. Thank you soooo much! Sorry for such a long email especially since it doesn’t let me separate it into paragraphs for some reason but at least I finally got on here with and update! : ) We love ya!