Author Archives: dschmidt

6th Annual JPL Golf Tournament

By Alexis Shoemaker

On April 22, 2007 the Lee Family welcomed a beautiful little girl into this world. Handpicked and deliver no doubtingly by the hand of God himself. A miracle meant to inspire and led. The pregnancy and delivery was ideal and Jocelyn was born seemingly healthy. She was full of happiness and spread that happiness to everyone that had the honor of meeting her and being a part of her life. But a few months after birth it became apparent to her parents that Jocelyn was not developing the way a normal child was supposed to. Optimistic and based on little experience, the Lee’s were hopeful that their little girl was just moving at her own pace was not yet ready. However, at her 4 month check-up reality came crashing in on the Lee Family, and after doctors ran many test and addressed Jocelyn’s extremely low muscle tone, they concluded that Jocelyn if fact had Spinal Muscular Atrophy or SMA, a motor neuron disease. Spinal Muscular Atrophy (SMA) is a motor neuron disease. SMA occurs when there is an alternation in the SMN1 gene, in which the SMN protein that plays a critical role in the survival of nerve cells in the spinal cord is significantly reduced; the spinal cord is responsible for muscle contraction. These motor neurons affect the voluntary muscles used for activities such as crawling, walking, head and neck control, and swallowing. In other words, as the muscles do not function as they are meant too, they become smaller and weaker, thus resulting in atrophy. SMA is known as an autosomal recessive disease, meaning that those with the disease must have two copies of the altered SMNI gene.  It is a relatively common “rare disorder”: approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. ( and DNA Learning Center).

Can you imagine if your child was one 1 of the 6000 babies born with this horrible disease.  Many families would have given up, crawled into bed, and let the enormous grief associated with this disease consume them. But not the Lee’s. Jocelyn is no longer with us those dear to her physically, but spiritually she has never been more present. Jocelyn was a caterpillar trapped in her cocoon, but in the end was transformed into a beautiful butterfly. There is not one person they she touched that does not carry the mark of love she left behind. Rabindranath Tagore once said, The butterfly counts not months but moments, and has time enough.  Jocelyn was here only a short time, but the legacy she accomplish was uncomparable.

The Lee family now faces the same journey with their son Nathan, but one thing they took from their brief, but wonderful time with Jocelyn is that everything happens for a reason and there is an opportunity behind every challenge to make a difference and change the lives of others; that is exactly what their children have done for them and others. No amount of pain and grief could undo the love and precious memories that have followed their birth. Therefore, the Lee’s are in the of process to setting up a foundation in Jocelyn’s honor to help other families facing SMA, but in the meantime they host yearly fundraisers that help fund and support families with SMA in need.  One annual event is held right in our back yard here in Lake Royale and is rapidly approaching and we need your support. On April 26, 2014 at 12:00pm, the Lee Family and their many supporters, family and friends will be holding the 6th Annual Jocelyn Page Lee SMA Golf Fundraiser at the River Gold and Country Club located at 170 Clear Water Road in Louisburg, NC 27549; Entry fee will be $50 per person or $200/foursome and Lunch is included with registration. Individuals and businesses can also become tournament or hole sponsors. Tournament Sponsorship is $250 and Hole sponsorship is $100. For more information and other donation options please click on the link Please spread the word and help carry on Jocelyn’s amazing legacy.

Posted in Journal | Leave a comment

Congratulations to our 2012 board members!

We had our first board of directors meeting on May 1st and have elected the following to the board:

  • President – Shane Lee
  • Vice Pres. – Jennifer Lee
  • Secretary – Susan Simmons
  • Treasurer – Derek Schmidt

These positions are 4 year terms, per our by-laws.  We will now be holding our meetings quarterly.  We look forward to continuing to raise awareness and funds for such a great cause.

Posted in Journal | Leave a comment

2012 Golf Tournament – Thank You!

1000105 Th 2012 Golf Tournament   Thank You!

2012 Annual Golf Tournament

Wow, what a day!  We had a great outpouring of love and support for a successful 4th Annual Golf Tournament today.  Thank you to all who came out to support such a great cause.  100% of the proceeds today went to Families of SMA (

Posted in Journal | Leave a comment

2012 Annual Benefit Thank You!

IMG0335 Th 2012 Annual Benefit Thank You!

2012 Annual Benefit Photos

On behalf of the JPL Foundation we would like to thank all who came out for our 5th Annual Benefit Dinner last night!  This was a very difficult event as it’s the first since our borrowed angel Jocelyn has returned home to the Lord.  Jocelyn has touched many people over the years and we have been able to raise both awareness as well as funds to help find a cure.  This year we raised over $6,000!

Congratulations to Bob & Lisa Ansalvish who won this years trip raffle.  They have won accommodations for a 3 day / 2 night  trip.

Thanks again to all who supported us in this event.  We look forward to seeing many of you at our upcoming golf tournament.

Posted in Journal | Leave a comment

Benefit this Saturday night!

Would love to see all our friends & family join us on Saturday night. This benefit is in honor of our borrowed Angel – Jocelyn Paige Lee as we still fight for the cure for SMA. Contact us for tickets!!! A special THANKS to everyone who has already purchased tickets or made a Silent Auction donation for the event!

Posted in Journal | Leave a comment